Dementia Academy: Developing an Integrated Care Pathway
There is currently huge interest in and awareness of dementia. This has been ignited by the publication of the National Dementia Strategy in 2009, energised by the first Prime Minister’s challenge on dementia in 2012 and fuelled by a raft of developments such as the hospital dementia scheme, the primary care detection initiative, the creation of Dementia Action Alliances across the country, reduction in the prescription of antipsychotic drugs by 50% and the creation of one million dementia friends. Support for people with dementia was rated in the top five in importance by the NHS Citizen’s Jury in 2015 (NHS England News 2 March 2016).
For the last year there has been a focus from NHS England on the ambition that two thirds of the estimated number of people with dementia will have a formal diagnosis and post diagnostic support. A great deal of focus has been on primary care emphasising the long-term nature of dementia and the importance of getting care management right which includes prompt assessment and treatment. There has been much debate on whether GPs should be empowered to initiate anti-Alzheimer’s medications.
NHS England’s aspiration is not to persuade GPs to diagnose dementia but to facilitate information so GPs can feel safe about diagnosing dementia in certain clinical situations. There is a need to empower GPs to be able to make a diagnosis if they think that is clinically justified and appropriate.
Secondly for post diagnostic care the five P’s demonstrate the advantages of investigating people with memory problems: discovering treatable emotional and Physical illness; installing Post diagnostic support for carers and families with evidence that this can Prevent crises; emPowering people with dementia and their carers; and finally Prevention of significant cognitive decline with interventions directed towards vascular risk factors.
Thirdly the ability to manage a person with dementia is key and we need to ensure that the appetite for improving the care of people with dementia is ever present.
New publications launched this week will help support GPs
- Dementia Revealed: What Primary Care Needs to Know
- Dementia diagnosis and management: A brief pragmatic resource for general practitioners
Additionally the Dementia Academy is developing an integrated dementia pathway to help support practice and understanding of the requirements at every stage of the patient journey.
The Dementia Academy had its first MasterClass on 2 March 2016 with a focus on primary care. Here are some photos, files and notes from the day:
- Overview of dementia ‘Then and now’, Ross Dunne
- Case study for GPs
- Needs of family carers of people with dementia, GPs 2015
- The needs of family care givers, Sue Ashcroft-Simpson
- The Zarit Burden Interview
- Dementia and Greater Manchester Police, Adele Owen
- Dementia Buddy, Guardian Angel and more information about the devices on the Guardian Angel website
- Dementia diagnosis and management, NHS England
- Driving and Dementia, Alison Morris
- Emergency Information Card, Greater Manchester Police
- Family carers discussion
- Best practice guidance in covert administration of medication, NHS PrescQIPP
- Lying to people with dementia: treacherous act or beneficial therapy? Tony McElveen
DEMENTIA EMERGENCY APP
A free app for emergency service personnel and family carers to help them deal with emergency situations involving people living with dementia. It includes general advice on how to approach someone with mid to later stage dementia who is anxious or upset and guidance on dealing with specific situations.
Dementia diagnosis and management: A brief pragmatic resource for general practitioners
This resource pack has been brought together by NHS England with the aim of supporting GPs to identify and appropriately manage dementia patients in the primary care environment.