The role of genetics and assisted nutrition in MND

MND Academy will host a live webinar on Friday, 13th November at 15:00 GMT. You are invited to watch the webinar from your computer or tablet. We will be live for 1 hour 45 minutes via Zoom and a recording of the MND Academy session will be available following the meeting.

15:00 – 15:55 MND Academy webinar:
The role of genetics and assisted nutrition in MND

15:55 – 16:00 Break

16:00 – 16:45 Zambon UK Ltd Promotional satellite symposium:
Advanced Care Planning in Motor Neurone Disease and promotional case studies

MND Academy webinar:
The role of genetics and assisted nutrition in MND

Overview:

Genetics is rapidly changing the care of people living with MND. The arrival of the first gene-targeted therapy, tofersen for SOD1-MND, means that genetic testing now has direct consequences for treatment. This session will give a practical overview of MND genetics for the multidisciplinary team. We will review the current landscape of targeted therapies, including antisense oligonucleotides and other approaches in clinical trials. We will also touch on how genetic research in Sheffield is identifying new therapeutic targets for the wider MND population.Managing nutrition is a vital part of caring for someone with MND, as the condition often causes swallowing difficulties and weight loss. This session will also discuss assisted nutrition in people living with MND and will outline a quality improvement project on the development of a gastrostomy pathway. Pathway mapping and streamlining of services to improve outcomes post PEG insertion will be discussed.

Objectives:

1. Understand the main genetic causes of MND and when genetic testing should be offered
2. Describe the new gene-targeted therapies in MND, and how to support patients and families with genetic results
3. Understand the pathways for assisted nutrition in MND, including gastrostomy

Zambon UK Ltd Promotional satellite symposium:
Advanced Care Planning in Motor Neurone Disease and promotional case studies

Overview:

This 45-minute presentation will cover when best to provide your patients living with MND the opportunity to discuss their wishes and how to effectively document these conversations. It will also tackle the complexities that we are faced with when having advanced care planning conversations, including barriers of acceptance of the disease, cognitive impairment and discord between the patient, family and healthcare professionals. Promotional case studies will also be shared

This satellite symposium is intended for UK healthcare professionals only.

This event is free to attend as a result of sponsorship from our sponsors. The current event sponsors are listed on this page. In the interest of Neurology Academy and our sponsors’ legitimate business interests, we make available your name, job title and workplace to our sponsors. It allows us to attract the most appropriate sponsors, delegates and speakers for the events and to facilitate potential collaboration and communication between you and the sponsors; and allows us to offer other relevant events and services to the healthcare and life science industries. You can ask us not to share your your name, job title and workplace by emailing info@neurologyacademy.org. We respect the privacy of every person for whom we have personal data. The group privacy and cookies policy can be viewed here.