Neuromuscular Academy

Raising awareness, improving outcomes

Raising awareness of, and providing education around recognition, diagnosis, and treatment of neuromuscular conditions, this Academy seeks to improve the lives of infants, children and adults living with a neuromuscular condition.

Every day counts

Early recognition, diagnosis and access to treatment are essential to ensure the best possible quality of life and health outcomes for an infant with spinal muscular atrophy (SMA). In paediatric SMA, every day counts - our new pathway can help understand why, and how to make it count for good.

SMA treatment pathway
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Raising awareness, improving education, changing lives

By raising awareness of, and providing education around recognition, diagnosis, and treatment of neuromuscular conditions, professionals can develop the knowledge and confidence they need, and the lives of those affected by a neuromuscular condition can be transformed for the better.

By clinicians, for clinicians

Compelled by the needs they saw in their daily practice, healthcare professionals have come together from across different backgrounds, localities, experiences and service models to develop this Academy. Recognising a need for better awareness, improved education and accessible resources, they have led the development of these essential elements.

Putting education into practice

All of our Academies place a strong emphasis on the practical application of learning, and with Neuromuscular Academy, the practical came first. Developing two national pathways for spinal muscular atrophy via a professional consensus, both the paediatric and adult pathways are leading the way for improved recognition, diagnosis and treatment access. Our first MasterClass was developed as a result of this work.

18 years of tried and tested education

Our first MasterClass was established in 2002 for Parkinson's, when the in-depth yet hands-on style of Academy MasterClasses was radically different to traditional medical education. Almost two decades later, applied to a whole range of neurological conditions, it still is.

Coming soon

There aren't any upcoming events right now, but there's always something to learn! You can view our back catalogue of webinars and videos, visit our news pages, or learn from colleagues around the country via our projects and resources sections.


On Demand Webinars

We have now developed a short, practical webinar to help healthcare professionals to understand what SMA is, how it presents, how to treat it, and why early detection, diagnosis and treatment are essential to children's outcomes.


About

Neuromuscular Academy is the first bespoke course for healthcare professionals to receive expert training in neuromuscular conditions like spinal muscular atrophy.

Neuromuscular disorders refer broadly to a range of conditions which impair muscle function whether directly (as pathologies of the voluntary muscle) or indirectly (as pathologies of the peripheral nervous system or neuromuscular junctions), and includes multiple sclerosis (MS) and motor neurone disease (MND).

Other neuromuscular conditions which are often lesser known in terms of presentation and management, include Charcot-Marie-Tooth disease, muscular dystrophy, myasthenia gravis and spinal muscular atrophy (SMA). It is conditions like these which Neuromuscular Academy will focus on supporting through targeted education and improved services.

Initially resulting from a group of professionals and their concerns about the education and awareness of paediatric spinal muscular atrophy, this Academy is beginning to take steps to ensure healthcare professionals are equipped with the knowledge and confidence to detect, diagnose, treat and support people with neuromuscular conditions at every step of their journey.

Whilst multiple sclerosis (MS) is a neuromuscular condition, its high prevalence mean there is a much higher likelihood of healthcare professionals interacting with or supporting someone with MS than with many of the other neuromuscular conditions. This affects awareness, service demand and delivery, and educational priorities, all of which are addressed via MS Academy.

Spinal Muscular Atrophy: Paediatric Care Pathway

Early recognition, diagnosis and access to treatment are essential to ensure the best possible quality of life and health outcomes for an infant with spinal muscular atrophy (SMA). In paediatric SMA, every day counts - our new pathway can help understand why, and how to make it count for good.

Supporters

Our work is made possible because of the wider support we receive, and we are incredibly grateful. Thanks to that support, we are transforming healthcare and changing the lives of people living with neurological conditions.

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Diagnosing Spinal Muscular Atrophy: Every Day Counts Watch now
SMA in infants: a new era for management Watch now

Articles

Neuromuscular Academy
News and articles

16 Aug 2021 Posted in News

First ever national pathway for adult SMA launches

Spinal muscular atrophy (SMA) is a genetic disease causing progressive muscle weakness and loss of movement. It affects people at different ages, in different ways, and with different rates of progression depending on the form of SMA.

Read more

People

Academy and faculty leaders

We are led and supported by experts with a variety of backgrounds across a range of disciplines. By bringing different passions to the Academy, they ensure we maintain a high quality of content and information across a diverse field of knowledge.

Sue Thomas
Independent Healthcare Consultant
Dr Vasantha Gowda
Consultant Paediatric Neurologist
Sarah Mehta
Medical Writer
Lisa Edel
Senior Specialist Paediatric Respiratory Neuromuscular Physiotherapist
Dr Min Ong
Paediatric Neurology Consultant
Joela Mathews
Lead Neuroscience Pharmacist
Dr Channa Hewamadduma
Consultant Neurologist and Honorary Senior Lecturer

Resources

Every day counts

Early recognition, diagnosis and access to treatment are essential to ensure the best possible quality of life and health outcomes for an infant with spinal muscular atrophy (SMA). In paediatric SMA, every day counts - our new pathway can help understand why, and how to make it count for good.