Neuromuscular Academy

Raising awareness, improving outcomes

Raising awareness of, and providing education around recognition, diagnosis, and treatment of neuromuscular conditions, this Academy seeks to improve the lives of infants, children and adults living with a neuromuscular condition.

Every day counts

Early recognition, diagnosis and access to treatment are essential to ensure the best possible quality of life and health outcomes for an infant with spinal muscular atrophy (SMA). In paediatric SMA, every day counts - our new pathway can help understand why, and how to make it count for good.

SMA treatment pathway
Search Neuromuscular Academy MasterClasses and Events

Raising awareness, improving education, changing lives

By raising awareness of, and providing education around recognition, diagnosis, and treatment of neuromuscular conditions, professionals can develop the knowledge and confidence they need, and the lives of those affected by a neuromuscular condition can be transformed for the better.

Coming soon

There aren't any upcoming events right now, but there's always something to learn! You can view our back catalogue of webinars and videos, visit our news pages, or learn from colleagues around the country via our projects and resources sections.


About

Neuromuscular Academy is the first bespoke course for healthcare professionals to receive expert training in neuromuscular conditions like spinal muscular atrophy.

Neuromuscular disorders refer broadly to a range of conditions which impair muscle function whether directly (as pathologies of the voluntary muscle) or indirectly (as pathologies of the peripheral nervous system or neuromuscular junctions), and includes multiple sclerosis (MS) and motor neurone disease (MND).

Other neuromuscular conditions which are often lesser known in terms of presentation and management, include Charcot-Marie-Tooth disease, muscular dystrophy, myasthenia gravis and spinal muscular atrophy (SMA). It is conditions like these which Neuromuscular Academy will focus on supporting through targeted education and improved services.

Initially resulting from a group of professionals and their concerns about the education and awareness of paediatric spinal muscular atrophy, this Academy is beginning to take steps to ensure healthcare professionals are equipped with the knowledge and confidence to detect, diagnose, treat and support people with neuromuscular conditions at every step of their journey.

Whilst multiple sclerosis (MS) is a neuromuscular condition, its high prevalence mean there is a much higher likelihood of healthcare professionals interacting with or supporting someone with MS than with many of the other neuromuscular conditions. This affects awareness, service demand and delivery, and educational priorities, all of which are addressed via MS Academy.

Spinal Muscular Atrophy: Paediatric Care Pathway

Early recognition, diagnosis and access to treatment are essential to ensure the best possible quality of life and health outcomes for an infant with spinal muscular atrophy (SMA). In paediatric SMA, every day counts - our new pathway can help understand why, and how to make it count for good.

Supporters

Our work is made possible because of the wider support we receive, and we are incredibly grateful. Thanks to that support, we are transforming healthcare and changing the lives of people living with neurological conditions.

Become a supporter
Diagnosing Spinal Muscular Atrophy: Every Day Counts Watch now

Articles

Neuromuscular Academy
News and articles

25 May 2021 Posted in Knowledge

SMA in reality: why we need early access to specialist medication

Hot on the heels of the urgent need to improve recognition and diagnosis of SMA is prompt access to medication to halt progression of the disease.

Read more

People

Academy and faculty leaders

We are led and supported by experts with a variety of backgrounds across a range of disciplines. By bringing different passions to the Academy, they ensure we maintain a high quality of content and information across a diverse field of knowledge.


Resources

Every day counts

Early recognition, diagnosis and access to treatment are essential to ensure the best possible quality of life and health outcomes for an infant with spinal muscular atrophy (SMA). In paediatric SMA, every day counts - our new pathway can help understand why, and how to make it count for good.