Collaborative approaches to Huntingdon's service redesign

On 27th May, 60 healthcare professionals spanning commissioning, management, clinical work and the voluntary sector gathered to hone their understanding of neurology commissioning. Find our conference overview here or read on for a better understanding of commissioning in neurology!

Commissioner Jane Williams from NHS Guildford and Waverley CCG gave a practical overview of developing a template specification for Huntington’s services, drawing on experience from her own area.

Jane described a collaborative project involving Surrey Heartlands, Kent, Surrey and Sussex Academic Health Science Network (AHSN), Roche Products Ltd. and the Huntington’s Disease Association (HDA), from July 2021 to January 2022. The work built on existing services to develop a fit-for-purpose service model providing equitable care. It took a co-production, co-design approach, with stakeholders from project partners, St George’s Hospital, local health and social care professionals, patients, families and carers.

They combined this local approach with a national survey of people affected by Huntingdon's to understand where current care was working well, along with local multi-stakeholder co-design events.

The work shaped a service delivery model for Huntingdon's, and the recruitment of a new Huntingdon's coordinator post. The final report from the work and its outputs are being shared with NHS commissioners in London and Leicestershire.