The Lewy Body Society has been going for almost 18 years and is the only UK based charity that focuses solely on LBD. The charity funds research into the disease (over £2.2m so far), raises awareness and provide information and support.

Jacqui has been involved with the society for 17 years, 9 years as a volunteer whilst continuing to work as an IT Business Analyst and the last 8 years on a full-time basis. She is a former carer for her father who had Lewy body dementia.