Lewy Body Society has been going for 19 years and that Jacqui has been involved for 18 years - 9 years as a volunteer and 9 on a full time basis and is the only UK based charity that focuses solely on LBD. The charity funds research into the disease (over £2.2m so far), raises awareness and provide information and support.

Jacqui has been involved with the society for 17 years, 9 years as a volunteer whilst continuing to work as an IT Business Analyst and the last 8 years on a full-time basis. She is a former carer for her father who had Lewy body dementia.