MS Service Provision in the UK 2019: Raising the Bar

Who this meeting is for?

Decision makers in relation to MS services and treatment within MS prescribing centres or the community in the UK.[expand title="Background information" tag="h3"]

Objectives:

1. Improve quality of life for people with MS
2. Improve access to specialist services for people with MS
3. Improve outcomes for people with MS
4. Improve efficiency of healthcare utilisation for MS services
5. Increase MS patient / MSer’s empowerment and activation

Background:

Postcode prescribing and other variances in MS Services were highlighted at our recent MS Academy meeting in Birmingham, in November. Access to and the prescribing of disease-modifying therapies have been well documented across the UK by surveys performed by the MS Society, MS Trust, the RCP and now by NHSE via its Bluteq high-cost drug database. At the Birmingham meeting, we reviewed many of the underlying reasons for variation in MS services and discussed potential solutions. There was virtually a unanimous response from attendees of the Birmingham meeting that we need to be proactive about addressing this issue and that the MS Academy was a forum for doing this. Following on from this we have widened the scope and put together a steering committee of dedicated people to address the issues raised at the meeting. The follow-on meeting we are hosting in July is to develop a programme of work around many of the issues highlighted, in particular putting in place systems to analyse and share data and to set-up and run a national quality improvement audit. We have also identified that a significant gap in achieving our ambitions is the necessary leadership skills to run and implement change-management programmes locally. We are therefore exploring setting-up a leadership training programme as part of our plans. Please note that we have defined a set of draft objectives that we need to ‘ratify’ or ‘adapt’ at this meeting and these need to be matched-up with well-defined outputs or results.However, we will also showcase success stories of work across the country and provide a forum for sharing best practice. If you decide to come to the meeting we are expecting all centres to showcase one of their success stories. We want to hear about what you did to improve your MS service and how your improvements may be useful to other centres in the UK.

Read more about the idea behind this meeting: → Let's raise the bar for MS Services→ View footage from last year's meeting and read our spotlight articles

[/expand][expand title="Steering Committee" tag="h3"]Chairs: Prof Gavin Giovannoni, Dr David Rog, Dr Gordon Mazibrada, Prof Jeremy HobartGeorge Pepper, Georgina Carr, David Martin, Gabriele De Luca, Joela Mathews, Sue Thomas, Sarah White, Dr Agne Straukiene, Jenny Ledsam, Karen Vernon, Dr Abdullah Shehu, Dr Tarunya Arun, Dr Brendan McLean, Dr Mark Westwood[/expand]View Programme (Version 03/07/19)

Poster submission:

We are showcasing success stories of work across the country and providing a forum for sharing best practice. All MS centres with representatives at the meeting are invited to share an example. → Find out more

Work stream sessions:

Session 1: choice of A and B→ Work stream A: Data Dr David Rog & Hassan Chaudhury→ Work stream B: Patients as partners Shift.msSession 2: choice of C, D and E→ Work stream C: Audit Prof Jeremy Hobart→ Work stream D: Social Determinants of Health Dr Helen Ford & Prof Gavin Giovannoni→ Work stream E: Wellness and Lifestyle Dr Agne Straukiene[expand title="What does the meeting cost?" tag="h3"]Each centre will be allocated two free places. Each of these applications will be entitled to a travel allowance, this will be discussed once your application is processed. Accommodation at the BCEC on the 8 July will be provided.All applications will be dealt with on a first come first served basis.If we receive more than 2 applications from the same centre, any further applicants from that centre will be placed on to a reservation list, pending applications from other centres. If we do not fill the spaces allocated for each centre, those on the reservations list will have the opportunity to attend; however, there will be a fee. The fee will cover the meeting, dinner and accommodation on the 8th July. This is to ensure we have a diverse range of attendees.One representative will be allocated for community MS nurses within each of the following regions: NW, NE, Midlands, SE, SW.[/expand]

CPD Accreditation:

'MS Service Provision in the UK 2019: Raising the Bar' has been approved by the Federation of the Royal Colleges of Physicians of the United Kingdom for 11 category 1 (external) CPD credit(s).This event has been approved for 10 hours CPD by the Royal College of Nursing. RCN Accredited until July 3th 2020 – The RCN cannot confirm the competence of any practitioner.Please note our terms and conditions.

If you have any queries, please contact Jamie McGregor at jamiemcgregor@neurologyacademy.org or Jake Michie at jakemichie@neurologyacademy.org to discuss.

Extent of representation so far:

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This activity has been supported by sponsorship from Roche Products Ltd, Biogen Idec Ltd, Novartis Pharmaceuticals UK Ltd, Merck Serono Ltd and Sanofi Genzyme. The sponsors have had no control over the educational content of this activity.

Endorsed by

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