Today, the Neurological Alliance launched the report from their 2018/19 National Neurology Patient Experience Survey The report: Neuro Patience; was chosen with intended irony – the results show that the experience of people with neurological conditions remain poor.The main message in the report is that care and support for people with neurological conditions should be accessible, personalised and holistic – but the survey findings show that this is far from the reality for many people.
The survey received over 10,000 responses meaning this year for the first time the results are broken down to regional level, based on the Sustainability and Transformation Partnership (STP) footprints. The findings reveal wide geographic variation in the experience of people with neurological conditions, representing a postcode lottery in access to care. People living in the most deprived areas report the poorest experiences of care.The National Neurology Patient Experience Survey presents a comprehensive picture of the experiences of people with neurological conditions in England. The largest survey of its kind, it has been run by The Neurological Alliance biennially since 2014. Find out more online.
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