MS Service Provision in the UK: Raising the Bar

Living well with MS – Raising the Bar workstream

The healthy lifestyle and social determinants of health workstreams have been merged

Background social determinants of health

After an initial meeting in 2018 to discuss service variance in MS, clinicians across the country agreed to a national plan to raise the bar for MS over the coming years.

To make sure that ‘no patient is left behind’, addressing the social determinants of health in people with MS is a must.

Background healthy lifestyle

There is increasing evidence that we need to look at a wider picture of a person’s health, wellness and lifestyle, including nutrition, movement, sleep and stress.

In MS, we know that:

The challenge of how we can share this information well, and encourage people with MS to take control of their lifestyles is becoming an essential aspect of treatment, not solely self-management.

How can I get involved?

The workstream has developed a survey to gauge current healthcare practitioners’ engagement with SDoH in their work with people with MS. This is an area of health which affects us all. Please complete the survey to help gather the data needed to affect change.

Complete the healthy lifestyle survey to help us understand how often general health checks and lifestyle and wellness discussions form part of your work with MS patients.

Establish a ‘disease-modifying lifestyle’ clinic in your locality. All the resources you need to begin either a virtual or in-person clinic are there.

If you decide to use the resources to run a clinic, please let us know.

Meet the workstream leads

Prof Helen Ford

Clinical Professor of Neurology, Leeds Teaching Hospitals NHS Trust

Dr Saúl Reyes

MS Fellow, Blizard Institute, Barts and The London School of Medicine and Dentistry, Queen Mary University of London, Barts and The London NHS Trust

Prof Gavin Giovannoni

Professor of Neurology, Barts and The London School of Medicine and Dentistry

Dr Agne Straukiene

Consultant Neurologist, Torbay and South Devon NHS Foundation Trust

Charlie Peel

Health Writer, Neurology Academy

Dr Colin Bannon

Retired GP and honorary doctor with MS himself

Other workstream members

Colin Bannon, Grazina Berry, Samantha Josephs, Miranda Sweet, Daisy Cam, Patricia Henry, Andrea Stennett, Anna Hawkins, Leonora Fisniku, Caroline Holbrook, Sarah Dronfield, Dom Thorpe, William Adams, Mathew Sweet, Diana Crowe

Find out more