Developing specialists in Spinal muscular atrophy – our first BasecampNews
Dr Min Ong and Dr Vasantha Gowda
Our first Basecamp in Spinal muscular atrophy (SMA) was developed after work to create a care pathway in SMA highlighting a gap in education for professionals looking to cultivate a specialism in the complex condition.
On 23rd November, a group of 23 healthcare professionals across neurology, paediatric neurology and paediatrics gathered to expand their understanding and improve their practice. Primarily consultants and registrars, there were also advanced physiotherapists, a clinical nurse specialist and lead pharmacist in attendance.
Scene setting and an introduction to SMA was followed swiftly by case studies to demonstrate the different types of SMA, accompanied by the way that requires tailoring of treatment and management options.
Delegate comment on 'SMA types'
Delegate comment on the 'service pathway'
The session on orthopaedic practice was held as a group discussion, which greatly benefited from the range of different disciplines in the room.
Delegate comment on 'orthopaedic practice'
Dr Giovanni Barranello took one of the final sessions, and spoke on 'Metabolism, nutrition in SMA Amino acid diet, hypoglycemia, growth'. His talk was a distinct highlight for many.
Delegate comments on 'nutrition and diet'
Additionally, an introduction to SMA assessment, diagnosis and management, we have a short free access webinar available via Neuromuscular Academy with expert speakers Dr Vasantha Gowda, Dr Min Ong, and Lisa Edel who present an overview of the condition, management through case studies, and respiratory management, respectively.