For paediatricians, paediatric neurologists and general trainees in neurology and consultant neurologists who would like to improve their understanding of SMA and its treatment and management
Halifax Hall, Sheffield University Campus
Endcliffe Vale Road
The SMA Basecamp course is the newest of our educational offerings and has been developed to educate paediatricians, paediatric neurologists and general neurologist trainees earlier in their careers to cultivate an interest in spinal muscular atrophy (SMA). It will also support consultant paediatricians and neurologists who would like to develop their expertise in SMA.
We hope that exposing healthcare professionals (HCPs) to modern SMA management earlier, more clinicians will be confident in the management of infants, children and adults with SMA or may be motivated to specialise in the condition. There is limited understanding around SMA at present and we hope that, by providing a dedicated training and support programme, we can encourage an interest in specialisation for some and improved understanding for all.
Background reading and preparation – 6 hours (trainees to do at home)
International standards of care for SMA
landmark papers on drug therapies for SMA (nusinersen, gene therapy, risdiplam) and / or review papers of new drug therapies in SMA
respiratory management in SMA care papers
physiotherapy management and changes to phenotype with patients on drug treatment of SMA, including spines
Who is this course for?
This basecamp is intended for paediatricians, paediatric neurologists and general trainees in neurology and consultant neurologists who would like to improve their understanding of SMA and its treatment and management, in their own role, its place within a wider multidisciplinary framework, and how the care provided fits within the broader pharmacologic and therapeutic treatment and management of SMA.
Last updated: 09/09/2021
Costs & accommodation
This course is fully funded for delegates based in the UK. Accommodation at the course venue is included for only one night. Delegates are able to claim up to a £100 travel allowance via reimbursement post-meeting. This covers standard class train travel or 45p per mile if driving to the meeting.
There will be a £100 deposit required to secure your place, this will be invoiced to you upon confirmation. Your deposit will be refunded upon completion of the course. Failure to attend, or, should you cancel your place less than 8 weeks prior to the course commencement date will result in a charge of £100.
Places are confirmed on a first come basis following receipt of the completed application form. A pre-course needs assessment will need to be completed to ensure the course is adapted for each individual’s needs. This will be sent to you upon confirmation.
We are aware that there is a wide variety of healthcare professionals involved in the optimal treatment and care for a person living with SMA, of whom neurologists are just one element. Many other secondary care specialists and therapists are essential to the treatment and management of SMA post-diagnosis, whilst primary care professionals are essential to detection and early referral for diagnosis.
If you are interested in tailored education around SMA to your own discipline or area of management, please do express your interest.
Meanwhile, the SMA pathways for children and adults adult and our free webinar on SMA and its management are all available to support you: → Neuromuscular Academy resources
This activity has been supported by sponsorship from Biogen Idec Limited and Roche Products Limited. The sponsors have had no control or input into the educational content of this activity.
SpeakersDr Min Ong
Paediatric Neurology Consultant, Sheffield Children’s NHS Foundation Trust Dr Vasantha Gowda
Consultant Paediatric Neurologist, Guys and St Thomas' NHS Foundation Trust of St Evelina's Children's Hospital London Lisa Edel
Senior Specialist Paediatric Respiratory Neuromuscular Physiotherapist, Great Ormond Street Hospital Dr Channa Hewamadduma
Consultant Neurologist and Honorary Senior Lecturer, Sheffield Teaching Hospitals NHS Foundation Trust Dr Giovanni Barranello
Clinical Associate Professor in Paediatric Neurology/ Neuromuscular Disorders, University College London Hospitals NHS Foundation Trust Dr Ed Bayley
Consultant Spinal Surgeon, Sheffield Children's NHS Foundation Trust and Sheffield Teaching Hospitals NHS Foundation Trust Kay White
Paediatric Neuromuscular Physiotherapist, Sheffield Children's NHS Foundation Trust Robert Muni Lofra
Consultant Physiotherapist, Newcastle University Translational and Clinical Research Institute